Spread Love for those with Rare Disorders

The Indonesia Rare Disorders Community and Lensa Anak Terminal, in collaboration with the UGM Library and Archives are organizing a photo workshop exhibition on the compassion shown in the daily lives of children with rare disorders.

Yogyakarta, March 5, 2024 - The Lobby of the UGM Library and Archives looks different. At the main entrance, library users are welcomed by images that speak volumes with millions of words. A photo workshop exhibition titled “ARTICURARE: Articulation of Love in the Daily Lives of People with Rare Disorders” was officially opened. Held in the WOW meeting room, the opening of the exhibition was attended by representatives from UGM Library and Archives, The Indonesia Rare Disorders Community, Lensa Anak Terminal, and participants of the Articurare photo workshop. This event is a concrete form of UGM Library and Archives to realize the Sustainable Development Goals.

Erna Widayati S.E. M.M., Head of Archives at UGM Library and Archives, expressed her appreciation for this collaboration, underlining the importance of increasing awareness of the existence of people with rare disorders in society. This activity is an effort to increase awareness in reducing premature mortality due to non-communicable diseases as a form of support for the achievement of Sustainable Development Goals.

Discussions involving photo workshop participants were also held, opening a window to the stories behind each photo on display. With the presence of various narratives and photos of the daily lives of children with rare disorders, this exhibition is a reminder of the importance of inclusion and empathy in fighting for their rights.

This exhibition can be visited in the lobby of UGM Library and Archives from March 5 to March 8, 2024. Various narratives and photos of the daily lives of children with rare disorders are a place to show the love that is present in the daily routine of children with rare disorders. The rare disorders experienced by these children include Cornelia de Lange Syndrome (CdLS), Achondroplasia, Apert Syndrome, and Crouzon Syndrome.

This event is part of the commemoration of World Rare Disease Day 2024. This event emphasizes the commitment to support the Sustainable Development Goals, especially in efforts to improve the health and welfare of society.

Through partnership with various communities, UGM Library and Archives has proven its commitment in building an inclusive society and caring for all individuals, without exception. This collaboration is expected to have a significant positive impact.

Contributor: Wasilatul Baroroh